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Sunday, March 9 • 3:30pm - 3:45pm
Is 23andMe Doomed? Nope. Here's Why.

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The emergence of cheap genome sequencing and commercialized testing (23andMe) has pushed many important legal and ethical questions to the forefront. Should parents be allowed to check for serious genomic defects in their children? Should physicians tell children and their parents about genomic test results for a disease that the child would not get until adulthood (e.g. BRCA1, Huntington's)? What about family members (parents and siblings) who do not want to know results? What about the woman who does not tell her sister about a positive BRCA1 test? Is she liable if the sister gets breast cancer? What is someone finds out that their father is not really their father? The fast rise of 23andMe and the FDA's halt to their testing demonstrate the difficult debate ahead. This talk will set up several real-life scenarios and their potential legal and ethical considerations. Facing these issues now will help pave the way for the coming future of personalized medicine and the connected self.

View official listing on sxsw.com
http://schedule.sxsw.com/2014/events/event_IAP27937

Speakers
avatar for Samuel Volchenboum

Samuel Volchenboum

Dir, Center for Research InformaticsUniversity of ChicagoSam has received his MD and PhD in molecular biology at the Mayo Clinic followed by pediatric residency training at Cincinnati Children's. He completed fellowships in pediatric hematology/oncology at the Dana-Farber Cancer Institute... Read More →


Sunday March 9, 2014 3:30pm - 3:45pm
Austin Convention Center, Ballroom F 500 E Cesar Chavez St

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